Online Patient Communities

When an individual is diagnosed with any chronic disease, there are often life changes that must take place in order to cope. Online patient communities can play a big role in the way an individual with a chronic condition can find hope and connect with people who understand what they are experiencing. In this way, these communities can provide emotional support. They can also be a way for patients with the same condition to share information they have learned as well as available resources regarding the condition they share. This can be a way for patients to play an active role in their treatment, as they are able to be more aware of possible options for treatment. Online patient communities are also a way for patients to participate in online forums with healthcare professionals as well as other patients or caregivers who are personally familiar with the same condition. There are terms of service that by joining a chat, you are agreeing to follow. 

These guidelines are in place to help provide a safe environment for patients to ask questions, and participate in conversations regarding topics related to asthma. Some examples of terms listed prior to entering a chat include: no foul language, attempts to steal passwords, attempts at hacking, advertising, harassment, abuse, impersonation of an administrator, and participants must be sixteen years of age, or older. By entering the chat, the participant is agreeing to comply with the terms listed on the website. 

Some people may be concerned about their own privacy when participating in an online patient community. These are generally closed groups, that are accessed by invitation only. However there is no way to fully prevent another person from sharing information shared in the group. It would important for the person sharing to keep in mind that they may want to avoid sharing personal information they do not want to have shared beyond the group. They could still ask questions, and participate in chats without sharing their own detailed personal health information.  These communities allow for patients suffering from asthma to discuss concerns or idea related to the condition. Also, parents or family members of patients with asthma can participate for ideas regarding symptom control and medication or treatment questions or concerns. 

See the list of online patient communities we recommend, for patients who suffer from asthma, at the right side of the screen.